Motivation & Life Dreams
Meghan has found competitive swimming to be her outlet. Her refuge. Her comfort. Her hope for being normal - as she won't share her...
The Importance of Good Friends
The importance of support is critical to any difficult situation. It's hard when one feels isolated and alone - even in a crowd of...
Misdiagnosis & Patient Advocates
This past year we have talked to many families with similar stories. Most have seen the same doctors - and share the same stories of...
504 Education Plans for Students
When Meghan and I started looking for ways to handle joint pain that can be caused by both EDS and POTS, our doctor suggested physical...
Helping Others to Understand
Understanding an invisible illness is hard. Maybe as hard as handling some of the symptoms. I think if you haven't witnessed it, you...
Guilt...
Guilt. I think this is one of the biggest reasons that patients who suffer from an invisible illness pretend to be fine. I know that...
Is POTS Really Auto-Immune?
In February 2014, it was announced that a small study had identified a possible bad antibody that was responsible for causing POTS. The...
